Imagine entering into a dream state of REM while completely awake, losing all muscle control and becoming paralyzed all while being completely 100% conscious of everything.
Imagine laughing, crying, getting embarassed, being angry or being overjoyed and collapsing in the middle of it- powerless to move or speak.
Imagine while scolding your child or arguing with someone, your jaw literally drops and you can't move your tongue or mouth to form words.
Imagine always looking for a wall or counter to brace yourself from your knees buckling during social interactions with friends.
Imagine having to yell for your husband to grab your sleeping child from your failing arms, as you carry them to bed because perhaps you heard something funny on the TV.
Imagine a sudden surge of emotion (any emotion) and then the ominous feeling of life and strength leaving the muscles of your extremities as you prepare for the inevitable collapse and shut down of your body, but not your brain.
Sudden loss of muscle tone when experiencing emotions- this is cataplexy.
Cataplexy is a symptom of narcolepsy, but not all narcoleptics have cataplexy. It is almost a non-existent condition without the presence of narcolepsy. Status cataplecticus is a state of cataplexy that lasts several hours to several days. Sufferers have been hospitalized by this condition. Abrupt withdrawal from venlafaxine or clomipramine (anti-cataplexy meds) can lead to status cataplecticus as well.
When an individual is in REM sleep at night, paralysis naturally occurs so that we do not act out our dreams. A person with narcolepsy has altered sleep/wake regulation. The wiring in a PWN brain perceives emotion as REM, thus the muscle meltdown. It is quite fascinating, and I look forward to reading new research regarding this phenomenon.
Although disturbing to watch, cataplexy is for the most part painless unless you hit your head or land in an unnatural position. Sometimes a cataplexy attack resembles a seizure in that the sufferer may twitch or spasm. It is important to remember that during cataplexy, the person remains fully conscious and can hear, smell and feel everything.
What to do if you are with someone (PWN) that has a cataplexy attack:
As a bystander or loved one, help the PWN to the ground if you see them struggling to stand or seem unsteady. Also just make sure their airway is clear, meaning hold their head straight so they can breathe. If a persons head is tucked into their chest or if their head falls back- it is extremely difficult to breathe (try this yourself). Do not touch, rub or jostle the person or try to "wake" them (this is really irritating and it will not work). Lastly, a cataplexy attack can be very embarassing, be sensitive to this and don't try to crack jokes or laugh at the person.
This is ME!!! I began experiencing cataplectic attacks about seven years ago. They were very mild at the time, but I went to see my doc about it anyway. She sent me to have MRIs, CAT scans, etc, and of course found nothing wrong. I even went to the ER a couple of times. Since then, the attacks have gotten more frequent and more...hmmm...hostile. Any time I get excited about something or eft onto my kids, I experience a cataplectic attack that lasts around 10 seconds.
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